How PDBP Works
A researcher sees a patient
First, a researcher meets with a participant, performs a clinical assessment, and obtains biospecimens. Participants include people with Parkinson's Disease, people without Parkinson's Disease (controls), and people with a Parkinson-like disorder (Parkinsonism).
The researcher submits biosamples and de-identified data
After meeting with a patient, the researcher submits biosamples to the NINDS biorepository, and de-identified clinical data to the PDBP Data Management Resource (DMR).
Research community accesses data and biospecimens
Once data is in the PDBP DMR, qualified researchers can request data. The Data Acquisition Committee (DAC) reviews the request, and then grants approval. Once biospecimens are in the biorepository, qualified researchers can request access to biosamples. The Parkinson's Disease Biosample Resource Acquisition Committee (PD BRAC) reviews the request and then grants approval.
Biomarkers Discovery
Researchers find biomarkers that will significantly improve clinical trial design and outcomes for Parkinson's disease and related disorders.