Press releases, workshop summaries, and editorials

A Request for Information (RFI) on Parkinson's disease and related neurodegenerative parkinsonisms, including progressive supranuclear palsy, corticobasal degeneration, multiple system atrophy, Parkinson’s disease dementia and other neurodegenerative parkinsonisms.

NINDS seeks broad input from individuals with Parkinson's disease and related disorders, families and caregivers, researchers, health care providers, patient advocates and advocacy organizations, scientific or professional organizations, and other interested members of the public.

This RFI will support development of the National Plan to End Parkinson's and inform the Advisory Council on Parkinson's Research, Care, and Services (ACPRCS) as they embark on their vital work.

View the RFI: NOT-NS-26-039: National Plan to End Parkinson's Request for Information (RFI) Strategy

The RFI closes on August 22, 2026.

We encourage you to share this opportunity widely with your networks.

For questions, contact NationalPDplan@nih.gov.
Thank you for your continued engagement and partnership.

The 2024 NINDS Parkinson’s Disease Biomarkers Program (PDBP) Annual Meeting provided a forum for participating scientists and stakeholders to discuss recent progress and emergent opportunities in Parkinson’s disease (PD), Lewy body dementia (LBD), and related parkinsonism biomarkers research. 

The 2023 NINDS PDBP Annual Meeting (hybrid) was held on September 21, 2023. Principal investigators, clinical coordinators and data management experts from each PDBP project, persons with lived experience, as well as representatives from the National Institutes of Health (NIH) and PD nonprofit organizations met to discuss biomarkers research and progress made over the last twelve months.

The 2021 PDBP Annual Consortium Meeting was held virtually on August 16-17, 2021. Principal Investigators (PIs), clinical coordinators and data management experts from each PDBP project, PDBP participants and caregivers, as well as representatives from the National Institutes of Health (NIH), PD nonprofit organizations, and the pharmaceutical industry met to discuss progress over the last twelve months in addition to current and future plans for the program.

The PDBP Annual Consortium Meeting was held as a virtual meeting on August 17-18, 2020.  The meeting provided a forum for participating scientists and stakeholders to discuss recent progress and emergent opportunities in Parkinson's disease (PD), Lewy body dementia (LBD) and related Parkinsonisms biomarker research. 

The PDBP Annual Consortium Meeting was held August 12-13, 2019 in Rockville, MD.  Principal investigators (PIs), clinical and data management experts from each PDBP project, and representatives from the  NIH, PD nonprofit organizations , and the pharmaceutical industry met to discuss progress over the last twelve months in addition to current and future plans for the program.