Parkinson's Disease Biospecimen Review Access Committee (PD-BRAC)

Requests for biosamples from the following biospecimen resources are reviewed by the Parkinson’s Disease Biospecimen Resource Access Committee (PD BRAC) to ensure that these samples are matched with relevant research requests and disseminated appropriately.

  • BioFIND, a cross-sectional clinical study, designed to discover biomarkers of Parkinson's disease and support novel biomarker discovery platforms. This is sponsored by the Michael J. Fox Foundation for Parkinson's Research (MJFF) with support from the National Institute of Neurological Disorders and Stroke (NINDS).
  • DATATOP, an interventional trial, conducted by the Parkinson Study Group in the late 1980s on the effect of Deprenyl and tocopherol (a form of vitamin E) in early PD.
  • The LRRK2 Cohort Consortium (LCC), an observational study funded by MJFF that studied groups of people with and without PD and the LRRK2 gene.
  • The Harvard Biomarker Study, a longitudinal Parkinson's Disease Biomarkers discovery program.
  • The Parkinson's Disease Biomarkers Program, a longitudinal Parkinson's Disease Biomarkers discovery program, led by the NINDS.

Application Process: Summary
Investigators who are interested in obtaining biosamples from the resources listed above must submit their request through the online submission webform, which also details the application requirements. Within the application, the availability of the samples of interest as well as available funding sources and/or planned grant application to support the proposed study. An overview of availability is at https://pdbp.ninds.nih.gov/biorepository. In addition, investigators can browse the catalog of samples at http://pdbp.ninds.nih.gov/biospecimens and/or contact the representative assigned to the repository of interest (Table 1) to determine current sample availability. All other questions should be directed to NINDS-PD-BRAC@ninds.nih.gov

How to apply for access to Parkinson's Disease biosample resources: