Parkinson's Disease Biospecimen Review Access Committee (PD-BRAC)

Requests for the following biospecimen resources are reviewed by the Parkinson’s Disease Biospecimen Resource Access Committee (PD BRAC) to ensure that these samples are appropriately disseminated and matched with the best research.

  • BioFIND, a cross-sectional Parkinson's Disease Biomarkers Discovery project led by the Michael J. Fox Foundation (MJFF), in collaboration with the National Institute of Neurological Disorders and Stroke (NINDS).
  • DATATOP, an intervention trial, conducted by the Parkinson Study Group in the late 1980s, from which samples are available.
  • The LRRK2 Consortium Cohort, a study of people both with and without the LRRK2 gene, funded by the MJFF.
  • The Harvard Biomarker Study, a longitudinal Parkinson's Disease Biomarkers discovery program
  • The Parkinson's Disease Biomarkers Program, a longitudinal Parkinson's Disease Biomarkers discovery program, led by the NINDS.

PAR 14-340, (X01-Request to access Parkinson's disease related biospecimens) has been discontinued.  As of August 12th 2016, investigators who are interested in obtaining biosamples from the resources listed above should submit their application through the online submission webform, which also details the application requirements. A new requirement is that the investigator notes in the application the availability of their samples of interest. An overview on availability can be found here: https://pdbp.ninds.nih.gov/biorepository. In addition, investigators can browse the catalogue of samples at (http://pdbp.ninds.nih.gov/biospecimens) and/or contact the representative assigned to the repository of interest (Table 1). All other questions should be directed to NINDS-PD-BRAC@ninds.nih.gov

How to apply for access to Parkinson's Disease biosample resources: